Florida's First Choice for Autism Support

Posts tagged ‘card’

Stress and Depression in Autism

Today I would like to tackle a darker topic, but one that I find to be incredibly important. It’s a subject that needs to be addressed in our society at large, but I want to focus on it in the realm of autism, because I’ve noticed it to a concerning degree, both from personal experience as well as observation. I’m talking about stress and depression. I’m grouping the 2 together as, in my opinion, they essentially go hand-in-hand. There are many things which cause us to feel stress in our daily lives, and for those on the autism spectrum, it can easily spiral down into a dark place of depression. Things such as an overabundance of stimuli, things not going our way at school and/or work, difficulty in our social lives, facing some level of discrimination, etc. Because of the challenges presented to us by ASD, overcoming these obstacles, keeping on the right track and steering clear of the trappings of stress/depression can be very difficult. I’ve dealt with these issues extensively over the course of my life and, while I’ve certainly recovered a great deal from the depression, I continue to struggle with constant stress and anxiety to this day. I would like to further address this topic with some of the information I learned through my research.

Now I should specify, because I’ve noticed that nowadays depression is very often misunderstood. It’s not just feeling down on yourself for a couple days. It’s a prolonged feeling of extreme sadness and hopelessness, characterized by a lack of ambition, pessimism about the future, and feeling very alone. For individuals with autism, the effects can be even worse, with some reporting “a loss of previously learned skills, greater difficulty carrying out everyday tasks, and at worst, suicide.” The findings I came to on this topic were staggering. I knew there was a problem, but I almost wasn’t expecting the severity. According to a study by Springer, nearly half of all people with autism will experience clinical depression at some point in their lives. And that’s not all it mentioned, it goes pretty in-depth into how there is a serious risk factor for those with autism, and much of it stems from our susceptibility to stress. Another thing I found morbidly interesting was that the depression rate seems highest in those with greater intelligence, and since many with autism are exceptionally gifted, you can see how there’s a vicious cycle here.

There truly needs to be more awareness on this issue. Not just for those on the autism spectrum, but for the general population. The reason I wanted to bring light to this crisis, besides personal experience, is because of the disproportionate rate at which it affects those in the autism community. I’m sure for many parents out there, either your loved one has dealt with extreme stress/depression, or maybe even you have when things got particularly rough. Just know that you’re not alone and there are always people who care about you.

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Autism and Speech Language Pathology

It’s no secret that for many on the autism spectrum, the development of linguistics and/or speech can be stunted. This is commonly regarded as one of the defining traits of “low-functioning autism,” where problems more severe than social difficulties can manifest themselves. I’m incredibly fortunate to have never had to deal with any of these particular issues, even excelling in the language department, but others are not so lucky. In my work here at CARD and PEPSA, I’ve done a lot of editing work for various teachers around the state, and one of the common professions I kept coming across were “speech-language pathologists” (SLPs). In truth, I had never heard of that term before, and so for this piece I decided to look more into them and their relationship to ASD. After doing some research, I’ve concluded that SLPs can be lifesavers when trying to help out low-functioning people with autism, particularly children.

So, what exactly is a speech-language pathologist? According to accredited SLPs Gail Richard and Donna Murray, “The speech-language pathologist’s most-familiar role involves helping someone produce speech – making sounds, speaking words, improving articulation (intelligibility) and so on. But speech-language pathologists do so much more. They also help with the language skill of putting words together to communicate ideas – either verbally or in reading and writing.” And, perhaps most importantly, they even help articulate social communication skills. Already you can begin to see why these SLPs are so sought after in the autism community. I’ve noticed through my editing work that having a background in speech-language pathology is a huge plus when it comes to being a special needs teacher, as are many who have partnered with PEPSA all throughout Florida.

Unfortunately, I’m no expert on the subject myself and as I’ve mentioned, I never attended a session with an SLP, so I can’t get into the nitty-gritty of what exactly they do or the methods they employ. There’s plenty of independent research you can do if you’re really interested. However, I would like to discuss one of the activities they utilize that I am familiar with, so if something like this interests you, perhaps consider contacting an SLP for your own child. If you’ve never heard of the Picture Exchange Communication System (PECS), you’ve probably at least seen an example of it before. They’re those cute little picture charts that speech-impaired people often use. The Tampa Police Department even started using them recently to serve their ASD community members thanks to the efforts of CARD! SLPs use them to teach basic communication skills, and to develop an understanding of language before delving into the actual use of language. There’s so much more that these amazing people do, but it would take an extremely long time to get into it all.

There might not be any other profession that seems more geared towards serving individuals with autism than SLPs, and I can certainly appreciate the work they do. If this seems like something helpful, there are plenty of them in the Tampa area alone, they’re all just a google search away!

Autism Rates Continue to Rise

The number we’ve all become accustomed to regarding the rate at which autism occurs is 1 in 68. The 1 in 68 figure held firm over the span of 4 years from 2010 to 2014. However, the latest report from the CDC (which comes out every two years and observes 8 year old children) shows a 15% increase in prevalence from 2014, and the figure has now moved up to 1 in 59. This, to me, is the most fascinating thing out of all the myriad of subjects I’ve researched regarding autism. What is going on exactly, and why does the amount of people being diagnosed with ASD continue to rise?

The answer almost certainly has to do with a heightened awareness to the condition and improvements in how we diagnose it. With that in mind, I imagine the 1 in 59 will shrink even further by the time I’ve graduated college and moved onto adulthood. However, there is one slight concern I have concerning the rapidly increasing number of diagnoses. As this article discusses, as we trend more towards diagnosing children at a younger age, we risk muddying the waters between genuine autism and other disabilities, or even standard neurodevelopmental setbacks. Once the autism label is applied, the consequences of that will stick with the individual for the rest of their lives.

The last thing I want is for anyone to receive an incorrect diagnosis. Obviously, I’m not a practicing psychologist, and I wouldn’t know the first thing about how to diagnose someone as being on the spectrum, unless they were severely low-functioning. I don’t doubt the ability or credibility of any professional, but I worry we’re becoming somewhat trigger happy with the ASD label. It simply does not seem right to me from a skeptical viewpoint for such rapid changes in such a short time as we see here. Especially considering that autism is not a transmittable disease like the common cold. I couldn’t be happier that preventative measures are better now than ever regarding ASD, but we need to be careful that we don’t start assuming that 1 in 2 or 3 have it.

From what I’ve read, it seems like the 1 in 59 will not be here to stay for very long. As the criteria for diagnosis broadens, and the amount of parents checking their children for ASD grows along with general awareness, I predict that by 2020 we’ll see it somewhere in the ballpark of 1 in 52 or 53. No matter what the prevalence truly is, groups like CARD will always be out there to support them and provide them with any help they need!

  • Gage

Meeting Donovan Smith

I had the amazing opportunity to have a private meet and greet with Tampa Bay Buccaneers starting offensive tackle, Donovan Smith. As someone who has loved football my entire life, I was very excited to meet a player for the first time in almost 15 years.

 

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Donovan Smith and I at One Buc Place

 

 

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Me with the Bucs’ Lombardi trophy

Donovan Smith was drafted in the second round of the 2015 NFL draft by the Bucs, and in that short time has already become one of their best young stars; and he’s not that much older than me! I didn’t get to speak with him for too long, but he seemed like a genuinely good guy who cared what we had to say.

 

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Raymond James Stadium on a beautiful Friday night.

 

It was a really great game, and an even better experience overall. I brought along one of my best friends, and we had fun cheering on Donovan and the Bucs against Cleveland. The Bucs ended up winning 30-13. I was even on the Jumbo-tron at one point, which has never happened before at any sporting event I’ve attended.

 

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Me with front row tickets to see the Bucs dismantle the Browns

Thank you Donovan for this great opportunity!

  • G. Sosso

Technology & Autism

It’s no secret that technology has completely changed the face of society, especially in the boom of the past 20 years or so. We have things like smart phones, tablets, notebooks, smart watches, etc. which have made things so much easier for all of us. But how does this affect those on the autism spectrum? In what ways can we utilize this new amazing technology to improve life for people with autism and their families? It can act as either a learning tool or a great source of entertainment depending on the context.

Perhaps the most prevalent use of technology in regards to people on the spectrum is that of “assistive technology.” The Technology-Related Assistance for Individuals with Disabilities Act of 1988 describes assistive technology as “any item, piece of equipment, or product system, whether acquired commercially, off-the-shelf, modified or customized, that is used to increase, maintain, or improve functional capabilities of individuals with disabilities,” in this case autism. One good example I can think of is an app that one of my mom’s good friends uses with her son called “First-Then Visual Schedule.” Oftentimes visual learning is the primary method for those with autism, and this $10 app helps present a visually stimulating schedule that will help people keep better track of their lives. This is just one example, there are many more out there that do a myriad of different things; here’s a convenient list on parenting.com that features 11 apps including the aforementioned First-Then Visual Schedule.

Technology is not confined to the assistive variety, in fact many use it as a way to stave off boredom. It’s no secret that children with autism particularly love video games, as they talk about here, and with the rise of casual gaming brought about by tablets, there’s a never-ending supply of fun to be had. While tech addiction is a real thing and should be avoided, sometimes as a parent you just need some time to yourself. One of the best ways to keep your children occupied is to get your kid a video game system, or even just an iPad with Candy Crush, Crossy Road or Angry Birds, and they can keep themselves busy for hours at a time. Trust me, I speak from 21+ years of experience.

One interesting thing I would like to highlight is this little gem: Project EVO. It’s a therapeutic tablet game made specifically for kids with autism. Here’s what CBS said about Project EVO: “As they [the kids] go through the game they are supposed to skirt around certain objects while choosing others. The idea is to condition the brain to sift through and organize information in real time, requiring a player to stay focused on the task at hand.” It’s a very interesting concept. The game has not yet been released, but I look forward to tracking its progress.

 

  • G. Sosso

Water Safety is Critical

water safety tip

There are a number of swimming lessons and water safety education resources throughout the communities we serve through CARD-USF. They may or may not have expertise working with students with autism spectrum disorder. CARD-USF staff provide trainings upon request to various recreation programs, but even with our training, you need to make sure the instructors and programs you choose are right for your family. Please let us know if there are some terrific programs that worked well for your family so we can share the good news with other families. Here is a list of resources for all 14 counties we serve: swim lessons

Disclaimer: As a policy, CARD will not lend its name to the endorsement of any specific program, practice, or model that is offered for service to people with autism and related disabilities. However, the sharing of information and training opportunities are key functions of the CARD program.

Early Childhood Training Series

We have had great success with our “Early Childhood Training Series”. We originally geared this training for new parents of children diagnosed with autism, but we have had numerous professionals and parents join us. Participants joined us from CARD-USF’s 14-county region as well as from various other regions in Florida and even from other states! Our topics have included
“Positive Collaborations with Schools”, “Addressing Challenging Behavior”, and “Enhancing Communication”. Coming up next on our list of topics are “Creating Visuals”, “Addressing Feeding Issues”, “Addressing Sleep Issues”, and “Preparing for Summer”.
These trainings run on the first Tuesday of every month from 6:00pm to 7:00pm. To participate online via adobe connect visit http://usf.adobeconnect.com/card_ect at 5:45pm on the night of the training. Or you can join us in person. Please RSVP beverlyking@usf.edu one week before the date of the training as space is limited. We look forward to keeping this project an ongoing opportunity and welcome all feedback. If there are other topics of interest that you would like to see in the future please let us know.
Your Early Childhood Team

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