Florida's First Choice for Autism Support

Posts tagged ‘ASD’

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Autism & Anime Connection

For those who may not be familiar with the term “anime,” I will provide a brief overview for reference. Simply put, anime is at its core, animated material originating from Japan. Think of them as Japanese cartoons, though there are some differences such as story structure and animation style.

But that’s not the purpose of this blog post; instead, I would like to focus on something that, while mostly anecdotal in nature, is something that I’ve always noticed and hits close to home with me. I am referring to the wide appeal anime typically has to people with autism spectrum disorder. It was difficult to find hard data or research on this topic, but with what little I could find, along with my own experiences, I’ve compiled some reasons as to why anime is as popular as it is among those with autism.

First and foremost is the element of escapism. Of course, this could be said of most mediums, not just anime. However, anime has a few advantages that separate it from many of its contemporaries. In anime, many main characters are social recluses; outcasts who have yet to find their own niches in life. Suddenly, they’re thrust into a magical world full of wonder and adventure where everyone accepts them. Almost every anime in existence has a bit of the classic “power of friendship” trope where the once-timid hero saves the day through the unbreakable bonds he’s forged with the rest of the cast. Most reading this can see why such a thing would be so appealing to someone on the autism spectrum. Many of us are awkward in social situations, and dream of having tons of friends who accept us for who we are. The presence of such things in anime is very alluring.

Reading non-verbal cues and noticing subtlety is not a strong suit for those with ASD. It’s one of the few nearly universal traits in fact. Fortunately, anime’s got that covered! Japanese animation does not focus on subtle movements and gestures in the same way Western cartoons do, and in order to compensate, a character’s emotions are put on full display using extremely obvious visual cues. For example, if a character is in love, hearts will appear over them. If they’re nervous, sweat drops will envelop them. If they’re angry, they’ll start heating up and their eyes will get cross, etc. Here is a great example:

Anime storytelling does a good job of always letting the audience know what is going on and how characters are feeling, which is good for those of us who cannot always easily discern such things.

Finally, is a pretty simple reason actually. The anime community is one of the most welcoming, tolerant groups out there. People with autism are often afraid of what the general population will think of them, and the thought of socializing is terrifying. Interest in anime is generally looked down upon by those who aren’t familiar with the medium, and as a result, are very warm towards those few who do share their interests. Those on the spectrum who’d ordinarily be afraid to express themselves, can find acceptance among those who share a common passion.

> G. Sosso

STEM Camp for Individuals with Disabilities

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For more information about the Summer STEM
Career Exploration program, please visit the link:
http://carrt.usf.edu/docs/STEM_summer_flyer.pdf

To register for this summer camp, please download the registration form at:
http://carrt.usf.edu/docs/STEM_summer_registration.pdf

Please email the filled form to: alqasemi@usf.edu and scarey3@usf.edu

For any questions or inquiries, please contact Dr. Redwan Alqasemi at 813-974-2115.

Personal Tales: Gage’s Autism Speech

I’ve been taking a Public Speaking class lately at Hillsborough Community College. Recently, I had to do an informative speech, and I chose to speak about autism. My speech, like every other, was broken up into 3 parts: what autism is and is not, autism prevalence and its rise in recent years, and what various organizations are doing to help individuals and families on the spectrum. I would like to share a rough transcript of my speech for you all today.

“Hello, my name is Gage Sosso and I will be talking to you today about autism spectrum disorder, or autism. I myself have been dealing with this condition my entire life, only being diagnosed at the age of 15. Since August of 2015, I have been working at the Center for Autism and Related Disabilities at USF, doing blog writing for them which requires me to do further research on autism. First, I would like to discuss what exactly ASD is, and what it is not.

Autism is, at its base, a neurological developmental disorder which affects social, non-verbal communicative and sometimes linguistic/verbal skills. Autism manifests differently for everyone, as it is a spectrum. There are two common terms in autism diagnosis: high-functioning and low-functioning. High-functioning people struggle in social situations, suffer from anxiety, and have trouble with non-verbal clues, amongst others. Low-functioning has all that, plus an inability, or at least extreme difficulty, to communicate at all.

Autism has an interesting reputation. Let me explain to you what it is not. As confirmed by mentalhelp.net, it is not mental retardation, as some would believe it to be. In fact, there is no correlation between autism and lack of intelligence. Many people on the spectrum actually have above average IQs. The other common portrayal, especially popular in Hollywood films like Rain Man, is the ‘autistic savant.’ While savant syndrome does stem from neurodevelopmental disorders, only 10% of savants are on the autism spectrum, as confirmed by the Wisconsin Medical Society in a study.

Our understanding of, and how we diagnose autism has changed drastically over the years. According to the Autism Science Foundation, as recently as the late 1980s, the diagnosis for autism was 1 in 10,000. Since then, it’s rose to 1 in 2,500, then 1 in 1,000, and so on. This rise has been astonishing to many psychologists and sociologists. It should also be noted that the rate of autism is higher in males than females.

A number that stuck for a while was 1 in 68, but the current number is 1 in 45. So why the meteoric rise? Is it an epidemic? Possibly, but there are other theories. One that I personally subscribe to comes from scientificamerican.com, which posts that autism rates have not increased; rather, the diagnosis has changed along with greater understanding in the field of neurosciences. What was once thought of as mental retardation, schizophrenia, or just outright insanity, is now understood to be ASD.

There is much being done in the area of autism awareness. Some organizations, such as the well-known Autism Speaks, focus primarily on research and figuring out what autism is on a fundamental level, where it comes from, why it happens, and potential ‘cures.’ They (and other, similar groups), have even delved into research on the vaccines cause autism theory, which is an entirely different can of worms that I won’t get into here. Essentially, they want to understand autism on a scientific level.

Then there are groups like CARD who take a more active approach in the lives of individuals and families with autism. They focus on community outreach, highlighting positive contributions people on the spectrum have made, as well as striving for inclusion and accessibility for those with disabilities. CARD, for example, has Autism Friendly Business, where a company can contact them and receive free training on how to better assist with customers or clients with autism. Essentially, these groups seek to improve the day-to-day lives of people with autism.

Autism is often symbolized by a puzzle piece. This came about in the 1960s for a very simple reason: the condition was considered puzzling by psychologists at the time. Maybe, just maybe, if we strive for inclusion and understanding, one day we’ll discover the missing piece to this mysterious puzzle.”

> G. Sosso

Link between Autism and Genius?

 

Hollywood has an odd history when it comes to portraying autism spectrum disorder in its movies. Autism is a wide spectrum, with many different behavioral traits exhibited, but Hollywood seemingly only ever portrays the “autistic savant.” With movies such as Rain Man, Adam, Mercury Rising, etc. people whose only exposure to autism comes through movies may be inclined to believe that everyone with autism is a genius with an IQ of 120+. This is obviously not the case, but the phenomena known as the autistic savant is certainly a real thing. In fact, there may be a link between ASD and having genius-level intellect or creativity.

Some of history’s greatest composers, scientists and innovators have been suspected of being on the autism spectrum. Although impossible to verify, according to several sources, Michelangelo, Albert Einstein, Isaac Newton, Thomas Jefferson, Charles Darwin, Wolfgang Amadeus Mozart and Emily Dickinson all showed strong signs of having autism during their lives. These men and women changed the world, in part due to devoting their lives to their pursuits. All were incredibly talented individuals.

One of the hallmarks of geniuses who leave their impact on the world is an utter devotion to what they do. This often requires shutting off other people completely in order to focus all your effort on your passion. As this article says, “Whether it is Edison inventing the electric light bulb, or Beethoven writing a symphony, the capacity to transcend prodigious challenges requires a keen ability to screen out distractions, whether social, or practical.” The same article goes in depth about the new film, Magnus, about the world chess champion Magnus Carlsen, who denies being on the autism spectrum, but his claims are treated with skepticism. Carlsen absorbs himself in chess so much he shuns his family in the process.

While not every individual on the autism spectrum is of the savant variety, there is definitely evidence that points to a correlation between ASD and being classified as “genius.” Savant or not, people on the spectrum continue to make impacts on the world today, with several talented people like Temple Grandin being great role models in the community, and shining beacons to the rest of the world that we can do great things.

 

  • G. Sosso

Having a Sibling with Autism

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“Don’t walk behind me; I may not lead. Don’t walk in front of me; I may not follow. Just walk beside me and be my friend.” – Albert Camus

Admittedly, having a sibling on the autism spectrum can be stressful at times, especially if the two of you are close in age. Growing up, it’s unlikely you’ll receive the same attention from your parents that they do. That is, of course, nobody’s fault, but for a young mind it can be hard to comprehend why your brother or sister is getting more attention than you. There’s also the unavoidable issue that if you’re not used to the behavior, dealing with someone (especially a child) with autism can be difficult. Many are prone to outbursts or tantrums, can’t fully understand social cues, don’t take an interest in a wide variety of activities, etc. But there’s so much more to it than that. There are few things more beautiful than the bond between siblings, and just because yours may have ASD doesn’t mean you can’t form that special relationship. Here are some of the unique advantages to having a sibling with autism; hopefully after reading this, you will gain a greater appreciation for your sibling.

First of all, you will gain a unique perspective of the world vicariously through your sibling. Kids on the autism spectrum almost always have a different outlook on life, and see the world in a unique, individual way, totally outside the norm. As the sibling without autism, you will learn very early on that the world is in no way black and white. There is no absolute binary on how things can be done, but rather, just like autism, there is a whole spectrum of possibilities. With good parental guidance, you will come to learn that individuality is something to be cherished and valued, not shunned. From your experiences dealing with an autistic sibling, you will go into adult life with an open mind and the ability to see the world from multiple viewpoints. Not only does this shape an individual with compassion, empathy, and acceptance of differences, but it also inspires innovation and creativity.

This brings me to my next point: creativity. One of the few universal traits of ASD is a difficulty in communication skills. But siblings, as I mentioned before, have a special and unique bond that allows them to understand each other on an entirely different level, autism or not. Considering the uniqueness with which those on the spectrum see the world, often being very creative, that rubs off on the other sibling. Simply having that connection exist and gaining firsthand exposure to such an exceptional worldview opens the mind to new creative potential. Desires to express oneself through music, visual design, writing or the arts can manifest in grow for both siblings, creating a symbiotic relationship.

The last point I want to talk about is how it can make you a far more accepting, compassionate person. Like I pointed out, having a sibling with autism can be a difficult thing, and their behaviors erratic at best. However, I believe this also presents an opportunity to grow into a better sibling and thus a better person overall. Growing up, you naturally come to know your siblings better than anyone else, and how to deal with all their little nuances. Dealing with the worst behaviors autism has to offer all throughout your formative years molds a person into someone who can empathize with just about anyone, and I believe you become all the better for it.

I would like to recommend this blog from Autism Speaks, from the perspective of a young lady whose brother has autism. It’s a great insight into everything I’ve been talking about, and I enjoyed reading it immensely.

  • G. Sosso

Meeting Donovan Smith

I had the amazing opportunity to have a private meet and greet with Tampa Bay Buccaneers starting offensive tackle, Donovan Smith. As someone who has loved football my entire life, I was very excited to meet a player for the first time in almost 15 years.

 

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Donovan Smith and I at One Buc Place

 

 

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Me with the Bucs’ Lombardi trophy

Donovan Smith was drafted in the second round of the 2015 NFL draft by the Bucs, and in that short time has already become one of their best young stars; and he’s not that much older than me! I didn’t get to speak with him for too long, but he seemed like a genuinely good guy who cared what we had to say.

 

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Raymond James Stadium on a beautiful Friday night.

 

It was a really great game, and an even better experience overall. I brought along one of my best friends, and we had fun cheering on Donovan and the Bucs against Cleveland. The Bucs ended up winning 30-13. I was even on the Jumbo-tron at one point, which has never happened before at any sporting event I’ve attended.

 

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Me with front row tickets to see the Bucs dismantle the Browns

Thank you Donovan for this great opportunity!

  • G. Sosso

Preparing for College with Autism

Speaking from personal experience, I know that going off to college as a young adult on the autism spectrum can be an overwhelming prospect, one that many will not be able to overcome. The thought of leaving home for college is scary for every high school graduate; I mean, we’re still kids at that point. But considering the unique challenges that face so many on the autism spectrum, it can be exponentially more difficult. My first attempt at university immediately following high school was, to be completely honest, a train wreck. However, I believe that every failure you make it through brings you one step closer to success, and I learned and grew a lot from that time. Now almost three years later and with much more experience and knowledge under my belt, I have a far better understanding of what it takes to be successful for those with autism looking to make it in college. I would like to share these thoughts with you all, in hopes that it will give you a better idea of how to overcome certain obstacles.

The main issue that I and so many others face is the sudden leap into independent living. No longer will mom and dad be there to bail you out of your problems, or sit you down and force you to do your homework. It’s harsh, but that’s just the way the world works. Preparation BEFORE going to college is absolutely essential. Now, assuming you were diagnosed with a disability before the age of 16, you should have had an Individual Education Program (IEP) set up throughout high school. The IEP is all a part of “transition planning,” which, according to this article, is training or experience, “from hygiene to banking to job training, driver’s education, sex education, college admissions and more,” all things which are never really covered in school, but are immensely important life skills.

But it doesn’t stop there; in fact, the journey is just beginning. Once you get to school, there are plenty of resources available to you, and it’s essential that you utilize them as much as possible. At USF, there’s the Students with Disabilities Services and just about every university has something similar. These people want to help you, but it’s your responsibility to go to them, they will not come to you. If you take away any one thing from this, it’s that you need to become an effective self-advocate. Is there pressure on you to take on more of a workload than you’re comfortable with? Make sure to let the advisor know. You only have to take a few classes at a time, there’s no rush to finish college as soon as possible.

On the Autism Speaks website, there’s a large and comprehensive list of resources for post-secondary education that I suggest you take a look at. Most importantly, remember to relax and pace yourself, stress can ruin your life in college if you let it!

  • G. Sosso

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